The following resources explore the intersection of public health, data, equity, and justice, including recommended practices and insights into how structural racism shapes these conversations. These tools aim to support understanding and action toward more just and equitable systems.
Community Data
- Report: Community Data Report. Coalition of Communities of Color. October 2024. Published by a MADE for Health Justice Community.
- Report: A Primer on Community Power, Place, and Structural Change. USC Dornslife Equity Research Institute. September 2020.
- Report: Rising Equitable Community Data Ecosystems (RECoDE) -- The Voices We Trust: Building Equity-Centered Community Data Ecosystems That Work for Everyone. G. Zielinskie, L. Gottschalk. Data.org. March 2022.
- Report: Structural Racism and Community Building. Lawrence, S. Sutton, A. Kubisch, G. Susi and K. Fulbright-Anderson. Aspen Institute Roundtable on Community Change. June 2004.
- Journal Article: Collaborative Governance in Theory and Practice. C. Ansell and A. Gash. Journal of Public Administration Research and Theory. October 2008.
- Toolkit: A Toolkit for Centering Racial Equity Throughout Data Integration. Actionable Intelligence for Social Policy (AISP). May 2020.
- Framework: Leveraging Community Information Exchanges for Equitable and Inclusive Data: The CIE® Data Equity Framework. Community Information Exchange San Diego. December 2021.
- Article: Engaging Antiracist And Decolonial Praxis To Advance Equity In Oregon Public Health Surveillance Practices: R.J. Petteway, D. López-Cevallos, M. Mohsini, A. Lopez, R.S. Hunte, et al. Health Affairs. June 2024. Published by a MADE for Health Justice Community.
- Article: How Eugenics Shaped Statistics: A. Clayton. Nautilus. October 2020.Â
- Journal Article: Structural Racism, Health Inequities, and the Two-Edged Sword of Data: Structural Problems Require Structural Solutions. N. Krieger. Frontiers in Public Health. April 2021.
- Book: Data Feminism. D'Ignazio and L. Klein. MIT Press. October 2023.
- Book: Counting Feminicide. D'Ignazio. MIT Press. April 2024.
- Journal Article: Can You Really Measure That? Combining Critical Race Theory and Quantitative Methods. J. Sablan and J. Tierney. American Educational Research Journal. 2014.
- Journal Article: What's Missing from Data Modernization? A Focus on Structural Racism. J.M. Porter, B.C. Castrucci, and J.Y. Orr. Health Equity. October 2023.
- Website: Native Nations Institute - University of Arizona.Â
- Essay: Keywords of the Datafied State: Indigenous Data Sovereignty. S. Carroll, M. Duarte, and M. Liboiron. Data and Society. April 2024.
- Journal Article: The CARE Principles for Indigenous Data Governance. S. Carroll, I. Garba, O. Figueroa-RodrÃguez, J. Holbrook, R. Lovett, S. Materechera, et al. Data Science Journal. November 2020.
- Journal Article: Operationalizing the CARE and FAIR Principles for Indigenous Data Futures. S. Carroll, E. Herczog, M. Hudson, L. Maple-Brown, D. Lovett, et al. Scientific Data. May 2021.
- Journal Article: Confronting Institutionalized Racism. C. Jones. Phylon. 2002.
- Journal Article: Levels of Racism: A Theoretic Framework and A Gardener's Tale. C. Jones. American Journal of Public Health. August 2000.
- Journal Article: Systems of Power, Axes of Inequity: Parallels, Intersections, Braiding the Strands Jones. Medical Care. October 2014.
- Journal Article: Conceptualizing, Contextualizing, and Operationalizing Race in Quantitative Health Sciences Research. Lett E, Asabor E, Beltrán S, MD, Cannon AM, Arah OA. Annals of Family Medicine. March/April 2022.Â